Disability Does Not Define John

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Through my work promoting the Cincinnati ReelAbilities Film Festival, I have gotten to know some pretty amazing people who have impacted me in very meaningful ways. Actor John Lawson is among them. I met and got to know John when I was promoting the 2015 Festival. He was a volunteer and a spokesperson with whom I spent a lot of time. Now living in the Los Angeles area for his acting, John is coming back to Cincinnati to join us next month as one of our 2017 Festival VIPs.

Actor John Lawson shares his story: disability does not define him.What I remember so much about my time with him two years ago was how John could make me laugh, but also, John is an incredible listener, an encourager and a leader. He went out of his way to let me know my work and contributions were valued, and he did that with everyone I saw him come in contact with. At our Film Festival, he spoke with eloquence and humor in spreading our message. He included people. He inspired not because he is someone who has a disability but because of who he is as a human being.

Below are two different posts John had written on his Facebook page awhile back (I am reprinting with his permission) about his story. Since they had some duplication, I cut out part of the second post. I hope that you will take a few minutes to read his words. They just may change the way you see and think about difference.

John Lawson’s Story (in his own words)

Feb 4, 2015

Wow, 28 years ago today February 4, 1987 is the day that I truly will never forget. I guess the cynical smart-ass side of me wants to write that I’ll never be able to forget for there is always someone coming up wanting to know how I lost my arms or who are very quick to remind me how “lucky” I am to be alive. I don’t know that I agree with their assessment of a measure of luck apportioned to me. I started playing the piano at age three, then began lessons at age four and studied classical piano for 17 straight years. At age 30, I had spent over half my life learning to play piano and now would spend the rest of my life without hands. That doesn’t sound very lucky.

I have been lucky to raise three wonderful, smart and somewhat “well adjusted” kids (hey I was their Dad) and had the very lucky chance to marry the love-of-my-life. Unluckily, the cancer won and I lost her too.

I spent five months of my life at the North Carolina Jaycee Burn Center in Chapel Hill North Carolina. My left hand and most of my arm below my elbow was amputated that day. My right hand was amputated above the wrist approximately one month later. As the burned skin debridement surgeries stopped and drugs wore off, I assumed a new role I never wanted to audition for as an upper extremity double amputee; a man with no hands left only to watch others play music.

While at the Burn Center, I received the best-specialized medical burn care from some of the world’s leading doctors and nurses. It was there that I decided to do my best to recover all aspects of my life. It was explained that losing limbs is similar to losing a loved one and you should experience the same emotions. While at the hospital, I never felt that I went through all the steps normally associated with a life changing experience such as my accident. If I did, I did them in my sleep, because from early on I realized I had to unconditionally accept my new role. I did find out, that since I never displayed the emotions expected, the psychiatrists that visited my room over the months noted in my chart that I was a “classic case of denial, and would suffer a catastrophic mental breakdown with in five years.”

Again, wow; twenty-eight years gone by and I’m still waiting for that mental breakdown. I think I would enjoy the time off.

Probably the most helpful wisdom I received after my amputations was by an unknown author, but passed on by my mother, “No one ever finds life worth living—you have to make it worth living.”

I am not special in the things I have done, with the conditions I have to deal with to do them. I could not control the circumstances that burned my body and resulted in the amputation of both my hands, but I can control what happens after the flesh has healed. I can control my attitude.

Early in my acting career, someone gave me a coffee mug with a saying printed on the outside, “Life is not a dress rehearsal.”

Those six words carry a powerful meaning. We only get to do this once and no matter what or where our stage, this is our one and only performance. I do not know what roles in life I will have to play in the years ahead, but I do know I will always chug along with the same attitude as the little blue engine pulling the long heavy train in the book read by my mother to me so many times as a child, “I think I can, I think I can, I think I can.”

Jan 10, 2017

I need to say I am not here to inspire you. I have lost count of strangers that approach me in public while grocery shopping or pumping gas to tell me that I am an inspiration. I guess they mean well, but to me they are just congratulating me for remembering to put on my pants before I left the house. There is nothing inspirational about pumping gas or grabbing a can of green beans off the shelf. You have been lied to about life with a disability.

Most people believe that because you have a disability that your life is worse; that being a person with a disability is a bad thing and that if you live with the disability, it makes you exceptional. Living with a disability is not a bad thing and it certainly doesn’t make you exceptional or inspirational.

Life as a person with disabilities can be difficult and we do have to overcome some things. But it’s not the things that you may think. It’s not the things to do with our bodies that we have to overcome. I believe that disability is caused by the way society is structured, rather than by a person’s impairment or difference. If society looks at ways of removing barriers that restrict life choices for people with disabilities, then disabled people can be independent and equal in society, with choice and control over their own lives. Of course I’m in a profession where the industry creates barriers that 95% of the work for characters with a disability are given to an able body actor. It’s these societal barriers of the industry that restrict the choices and control of my career.

So February 4, 2017 I will start using prosthetics for longer than I had my hands. Half of my life wearing hooks. Do they replace my hands? No, but they are a tool I’m forced to use for maintaining my independence in a society designed for able body people; a tool for me to pump gas or load my grocery cart. I’ve learned to use my prosthetics to best of my ability, so I know when people tell me “I’m an inspiration,” that they mean it as a compliment. I do understand that, but the reason it happens is because of this lie that’s been sold to the public that disability makes you exceptional and makes you inspirational. I’m sorry; but honestly, it doesn’t. I really believe that this propaganda that we’ve been sold is the greatest injustice and makes life hard for us.

Oh, and that quote about “the only disability in life is a bad attitude,” is total bullshit. It’s just not true. No amount of me smiling at a piano keyboard with a positive attitude will allow me to play as I used to touch the ivories with ten fingers.

I hope in my lifetime to live in a society where someone with a disability is not the exception, but just accepted as a norm. I hope to live in a society where a man stuffing a grocery cart is not an inspiration just because he is using prosthetics. I want to live in a society where we don’t have such low expectations of people with disabilities that we hire able body people to do jobs they are capable of performing. I hope in my lifetime to live in a society where we place value on genuine achievement by people with disabilities.

 

 

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