Lisa Desatnik
Sara Bitter Uses Storytelling To Educate About Disabilities
Story written by GTGA Intern Katie Reinstatler.
“I wanted to create a film for more than just my own kid. I wanted to find a way to do it on a larger scale, to utilize storytelling so more people would
connect with him, identify with him and root for him.”
This is the purpose and the passion behind Ethan the Brave, a short educational film on developmental disability driven by Sara Bitter, mother, and community educator on developmental disability, and created with the help of many, whose names will be mentioned later in this article. She has spent the start of every school year for the last several years teaching teachers, students, and fellow parents about Fragile X Syndrome, the syndrome with which her son lives. Fragile X Syndrome is a genetic condition that causes a variety of developmental problems, including learning disabilities and cognitive impairment. Males are more likely to be affected by this syndrome than females.
As the mother of a son living with developmental disability, her passion and drive in educating her community and the overall public about the ways that these disabilities affect those living with them, is evident. It is in the way she speaks about the work she does, how her movement suddenly becomes animated, and in the careful attention she pays to every detail. Sara is not only passionate about this work, and the film she has created, but she is absolutely committed to her work not only as the mother of a child living with developmental disability, but with the opportunities she has been afforded to be an educator to her community, to teachers, fellow parents, and students, who may not otherwise have access to such educational resources, if it weren’t for the film which Sara set out to create.
In speaking with her on why she wanted to do this, she told me, “I tried to focus on developmental disability because I feel like there’s not a lot of focus on it. I wanted to help students that aren’t getting a fair shake. That was my motivation in all of this, was the kids. So I really wanted Ethan to be a composite character of all these different people, to represent a wide variety of disabilities.”
Ethan the Brave came to Sara one afternoon. She sat at her kitchen table and spent an hour working on the story. Immediately, she knew she had to make it something bigger, that this was something that could be a real tool in spreading awareness about disability in schools, and more specifically, developmental disability. In her quest to make this a reality, she partnered with Reelabilities, a local film festival that focuses on disability, and created both an education committee dedicated to educating the Cincinnati public, and the film. With their collaboration, Sara was able to partner with Thunder-Sky, an art studio in Cincinnati for unconventional artists, many of whom are disabled themselves, to create the film, which features stop motion painting, drawing etc. of Ethan’s life, while a young boy narrates his story.
This is Ethan the Brave, a short 10 minute video that lets the audience know kids with disabilities are really not that much different from kids who don’t have disabilities. Ethan can run, and swim, and feel all the same emotions as the other kids. When Sara described the way she framed the story, she mentioned how “I wanted it to be fun, positive, and uplifting. I didn’t want it to be negative at all.” Too often, it seems, people focus on what those with disabilities can’t do, not what they can. Ethan at one point even says, “I don’t want people to be afraid of me.” He is just like everyone else, and this is how he wants to be treated.
Ultimately, that is the goal of Ethan the Brave, and it accomplishes that goal. Sara’s tenacity, dedication, pride, and absolute passion and compassion in her work and what she has accomplished with this radiates outward to everyone around her. For her, the most rewarding thing is knowing or at least hoping that there is a kid in the classes that watch this that will benefit from this film and the support they receive as a result of it.
Side Note: Ethan the Brave was recently also published as a book. You can purchase it on Amazon.com. 
CINspirational People: Brian Gregg
CINspirational People is a new feature of Good Things Going Around profiling diverse people of Greater Cincinnati, what inspires them, and what is inspiring about them. Today we are featuring Brian Gregg.
Know someone for us to consider? Please submit your idea.
GTGA: What is an accomplishment you achieved that you are proud of?
Brian Gregg: I don’t know that there is one single accomplishment I dwell on. Overall, I’m proud of beating the odds. I was born to a 17-year-old mother in a depressed steel town. She raised three children essentially on her own, at times making as little as $2.40 an hour. I worked as many as three jobs at a time to get through college. I’ve been blessed with a wonderful life and that foundation taught me anything is possible through hard work and determination.
GTGA: Tell us about someone who has been a positive influence in your life.
Brian: Everything I have today is because of my mother. She raised three kids, essentially as a single mom. We came from poverty. Not only was she a tremendous role model in how hard she worked and how great she was in caring for our family, but she put effort into keeping us on the straight and narrow. When I was a senior in high school and told her I had decided not to go to college, she absolutely put her foot down and insisted I go. If I hadn’t gone to college, my life would be completely different today, and not in a good way.
GTGA: What is a motto you live by and why or how has it impacted you?
Brian: “What doesn’t kill you makes you stronger.” I’m a fighter. When life knocks you on your arse, get up, learn from the experience and get right back into something positive. If we are not moving forward, we are dying. Every negative experience we have is a learning experience that makes us better.
GTGA: What is your biggest motivator?
Brian: My children: Sydney, 3, and Tyson, 2. I waited until I was in my 40s to get married and had my first child at 45. I never really strongly desired children, but they now absolutely hold my heart. I’m motivated to provide them with a great life and tremendous experiences. I am motivated to teach them the importance of being a good person and having a positive influence on the world. I am motivated to prepare them for adulthood and whatever it throws their way.
GTGA: Tell us about an act of kindness you have done, witnessed or been the recipient of and how that made you feel.
Brian: My son had open-heart surgery at the age of two months. It was a life-or-death matter. The outpouring of support and love we received from family and friends during this time was genuine and comforting. The commitment Cincinnati Children’s Hospital Medical Center had to his care was reassuring. We were extremely grateful to live so close to one of the best children’s hospitals in the world. The whole ordeal made us much more appreciative of family, friends, our community and life.
GTGA: Tell us about what you do and what are some of the reasons why you enjoy it.
Brian: I am the chief communications officer at Hamilton County Job and Family Services. I spent a decade as a newspaper reporter and then a few years in corporate public relations. This job marries the desire I had as a newspaper reporter to “change the world” with my move to public relations. It is much easier to get excited about work that changes lives than it is about selling a product or peddling market research. JFS helps about half a million people in this community each year and there are many great stories for me to tell. I am frequently amazed at the work performed by the 800 employees who work at JFS. From Director Moira Weir on down, I am working with folks who really care deeply about the people they serve.
#CINspirational #CINspiration
A Quote About Leaders Who Inspire Others
CINspirational People: Lauren Ulmer
CINspirational People is a new feature of Good Things Going Around profiling diverse people of Greater Cincinnati, what inspires them, and what is inspiring about them. Know someone for us to consider? Please submit your idea.
GTGA Intern Liza Hartke interviewed Lauren Ulmer as this CINspirational People feature.
GTGA Intern Liza: What is a motto you live by and why?
Lauren: Be somebody who makes everybody feel like a somebody. I strongly believe in the first and foremost fundamental truth that every person you cross paths with has dignity and worth – and they should be treated that way! I like to make people happy and show people they are important, simply because they are. People are special, they are gifts, so I try to always remember that in my day to day life. If everyone lived with a little more love and kindness towards others, just think what our world would look like!
GTGA Intern Liza: What are you looking forward to this summer?
Lauren: Very soon I am leaving for a mission trip in Chimaltenango, Guatemala to do service work at Agua Viva Children’s Home, an orphanage of dozens of children. This will be my second year going and I couldn’t be more excited! Working at Agua Viva has impacted my life more than I could have ever imagined. The work we do is important and appreciated, such as building roads and chicken coups, painting, and landscaping, but the time we have to spend with the kids is so much more valuable to me. Despite what they’ve been through, these kids are the happiest, most loving children I’ve ever laid eyes on. Spending time with them playing on recess, eating meals, and doing crafts together are the simple things that mean so much to these kids, and in turn, me. The little things are the most valuable and are often the things we take for granted every day. They have taught me more appreciation, humility, friendship, and love in the short span of a mission trip than I have learned during most of my life. A few of the girls and I write letters back and forth, and it’s an amazing feeling knowing they remember me and can’t wait to see me again – Agua Viva has groups come consistently throughout the year to do service work. My heart is absolutely full when I am at Agua Viva and I can’t help but count down the days until I am in that beautiful country with the most beautiful kids ever!
GTGA Intern Liza: How can others get more information about Agua Viva?
Lauren: For anyone who is interested in Agua Viva, sponsoring a child, or donating, please visit http://www.aguavivahome.org/
GTGA Intern Liza: Where do you see yourself within the next few years?
Lauren: In the next year, I plan to graduate from Xavier University in the Spring of 2016 with a double major in Communication Studies and Public Relations and a double minor in Advertising and Theology. I will definitely celebrate and enjoy my accomplishments by going on some sort of traveling vacation, and hopefully my third trip to Agua Viva. I also hope to settle into a full time job and begin my career in anything along the lines of event planning, nonprofit work, or communications/public relations. The best is yet to come!
GTGA Intern Liza: What advice would you give to people who are in need or some inspiration and motivation in their lives?
Lauren: First, I would challenge others to choose to see the good. Often, I think our minds are so clouded with negativity towards others and the world because of all the bad that is thrown in our faces. But if you make the conscience choice to see the good in people and in every situation, I think you’ll be much more likely to fill the world with more good yourselves. I would also say it’s important to step out of your comfort zone. Normally I get very homesick, which is why a mission trip to Guatemala didn’t seem very realistic to me at first. But once I threw myself out there, I didn’t want to come home. I think if you step outside your own box of comfort, you will surprise yourself with opportunities and experiences you might never have imagined for yourself. If you never try, you’ll never know. So take a chance. Life’s too short to sit back and watch it go by!
GTGA Intern Liza: Who has been a positive influence in your life?
Lauren: I am very lucky to say my mom is one of my best friends. She is the definition of a hardworking, caring, and loving mother. She is involved in the community, her work, and at home, and sometimes I wonder how she balances it all! She has a zest for fun in life while walking humbly, doing whatever needs to be done without a second guess. This has rubbed off on me and I have my mom to thank for being such a good example to my brothers and I. For all you do, for all you say, for all you are – I lov
e you mom!!
GTGA Intern Liza: What is your biggest motivator?
Lauren: I have this mindset that “good enough” is not okay with me. I want my life, the people in it, and the experiences shaping it to be above and beyond amazing. Living an “okay” life is not appealing to me. This motivates me to live a life both myself and God are proud of. I try to go the extra mile, talk to more people, take chances, and experience every opportunity possible in life while I am able, and I hope in the process I can lift others up and glorify God.
GTGA Intern Liza: Thank you, Lauren! Is there anything else you’d like to add?
Lauren: I’ll leave you with Colossians 3:14: “Most of all, let love guide your life. “
CINspirational People: Christina DeVine
CINspirational People is a new feature of Good Things Going Around profiling diverse people of Greater Cincinnati, what inspires them, and what is inspiring about them. Know someone for us to consider? Please submit your idea.
GTGA Liza: What is a motto you live by and why?
Christina: “Change your mindset, change your life!”
GTGA Liza: What is an accomplishment that you are proud of?
Christina: An accomplishment I’m proud of is following my heart and passion. I was told so many times I wouldn’t make it, or people would say, “well at least you have your hair and make up job to fall back on!”
GTGA Liza: Tell us about what you do and what are some reasons why you enjoy it.
Christina: I love everything thing that Epic stands for healthy, active, lifestyle. People come in for a healthy meal replacement shake, which replaces most peoples’ “fast food diet.” We also run free exercise classes to help people to save money. Over time, we have become a family supporting and encouraging each other and not letting anyone give up! Not only do we provide a positive atmosphere where people can come hang out with us while they drink there shake, we really care about people. Everyone who walks in the door we greet by name and anyone who comes in is always treated like family! We are here to help support the community in getting healthy.
GTGA Liza: How did you get involved with Herbalife?
Christina: I got started in HERBALIFE when I turned 23. I was an overweight, low energy, and self-conscious hairstylist. I was having what I call my “mid life 20’s crisis.” My friend told me about a place that served these meal replacement shakes. I stopped in twice a day for breakfast and lunch. By replacing my “fast food diet” with vitamins, minerals and nutrients the side effect just so happens to be happiness, more energy and weight loss. People started to notice, which started my business journey.
GTGA Liza: So, what is your favorite shake?
Christina: Lemon cream cake! It’s delicious!
GTGA Liza: What advice would you give to people who are in need of some inspiration and motivation in their lives?
Christina: My favorite quote is: “Don’t ask for life to be easier, ask how to get better!” Jim Rohn
