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Respect And Value Kathleen

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Today I’d like to introduce you to a friend who holds a very special place in my heart. Kathleen Sheil is an incredible example for all the qualities that I look up to another person. She is confident, yet humble. She is open and honest and genuine, and most definitely unafraid to stand up for herself and for others. She has this incredible way of making everyone feel welcome when in her presence. She gives of her time generously as a board member of Cincinnati nonprofit LADD (Living Arrangements for the Developmentally Disabled), where she lives independently, and numerous other disability related organizations. And she also seeks opportunities to encourage and inspire others to be all they can be.

Kathleen Sheil of Cincinnati has Down syndrome and wants people to know she is someone to be respected.I see Kathleen as a leader, not only among her peers, but in the community as well. I consider myself so fortunate to be among her friends. Kathleen inspires me to be a better person.

Over dinner the other night, we got to talking about life. Kathleen’s motto, “Go out with the negative and in with the positive,” was inspired early on by her parents who encouraged her to always be confident in herself.

“My mom has always told me to put my best foot forward and that I need to be learning the whole aspect of being on my own completely. My parents never treated me differently from my siblings. They want me to be independent and a person of energy, a leader. They want me to also do my best with everything I do, if they are with me or not with me,” she told me. “I need to live the moment and to think about what that one thing is that makes me happy. That one thing for me is not just talking, not just my friends or my family, and not just LADD, but just being myself.”

“And who IS Kathleen?,” I asked.

“I am someone who is beautiful, honest, respectful, very positive, outgoing, and a leader who encourages others to be very special. I like to make conversations with different people and get to know who they are.  I am a person with dreams and goals. I like to sing, do art, and plan events. I have always wanted to find that one person. I am very fortunate to have a family and friends who love me for who I am.

“I am someone who wants to be treated with respect,” she said.

A few weeks back, we heard about a CBS News report of how Iceland is eradicating Down syndrome with genetic testing and abortion. Kathleen was moved to action. She shared her thoughts in a letter to the Cincinnati Enquirer that was published. Among her words…”I want you to know that I have Down syndrome and I am important to this world. Yes, I may be different from you because of who I am, but we are all different from each other….Above all else, I am a person, like you, who deserves to be loved and respected. I have a lot of friends who are like me and who deserve to be loved and respected too. If I had not been born, the world would have missed out on getting to know Kathleen Sheil!”

THAT would have been a huge loss to this world because Kathleen, you make this world a better place.

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How Her Family Drives Her Passion For Volunteering

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It has been nearly four decades since Judy (and her husband, Dave) Albert first became one of the Spina Bifida Coalition of Cincinnati’s earliest volunteers. Back in the 1980s, when the Coalition was still very much a ‘grass roots’ organization, its address was her home and the phone rang in her house.

Judy Albert volunteers for the Spina Bifida Coalition of Cincinnati“She personally answered every request for help and deeply connected with those she assisted and worked with,” Diane Burns, SBCC program manager told me. “She led our strategic growth to a small, but effective, professionally staffed non-profit situated in an accessible office building, with an active social media and internet presence, successful partnerships with many other local disability groups, and perhaps most importantly, a close relationship with the interdisciplinary Center for Spina Bifida Care at Cincinnati Children’s Hospital Medical Center. Judy is one very significant reason that local support exists for more than 300 babies, children, teenagers, and adults in our community who live with spina bifida.”

Whether she is serving in a Board or committee capacity, volunteering at SBCC activities, recruiting other volunteers, offering ideas for strategic initiatives, or even serving as Mrs. Claus at the annual family holiday party, Judy’s ongoing support is felt in just about every aspect of the organization’s work. Judy even initiated SBCC’s key sustaining fundraiser – the Walk & Roll, an event that was quickly duplicated by the national Spina Bifida Association, and one that has raised around $800,000 since its inception.

Judy’s Story

Behind the passion of many driven volunteers is a deeply rooted relationship with the cause, one stemming from a very personal journey in life. And Judy is among them.

The year was 1979 when Tim came into this world, the second of three Albert sons.  Judy shared her story, “My obstetrician told us he would never break a record in the 100-yard dash but he would walk.  He further added that Tim would never have to go to war which I thought at the time was a strange thing to say to us.  Later while he was in the hospital a doctor told us he might not walk which contradicted what we had previously been told but he proved them wrong.”

The Alberts were given a book about Spina Bifida describing it as a ‘very serious birth defect’, scary words for any parent. “A parent from the organization told us that Tim probably wouldn’t be affected by everything in the book but to just enjoy him like any other baby.  This was the best advice we could have received.  As an infant we treated him like our other son, he just had many more doctor appointments,” Judy told me.

Growing up, Tim attended St. James Grade School and LaSalle High School.  He played soccer in grade school and was on the swim team at LaSalle. He has worked at Cincinnati Children’s Hospital Medical Center since 2001, currently in the Pathology Department as a histology technician. Tim purchased his own condo in 2005 and has lived on his own since that time.

His seizure disorder and other issues relating to his spina bifida have meant needing occasional assistance from his parents; however, Tim purchased his own condo in 2005 and has lived on his own since that time.  He likes to work out and plays wheelchair football.  He walks with braces and has a wheelchair when he needs to walk long distances.

“He never wanted to be treated differently always determined to make it on his own,” said Judy. “Tim has a great sense of humor always making jokes.  We are very fortunate to have Tim as our son and admire him for all of the challenges he has overcome.”

From Personal Success To Giving Back

“Raising a child with spina bifida involves commitment, patience, and perseverance, as well as a thorough knowledge of orthopedics, neurosurgery, urology, and a full breadth of therapies, a hefty dose of psychology and an understanding of developmental milestones, Judy not only nurtured her son Tim, but also her two other sons, while working full-time as a CPA and actively participating at her church, St. James White Oak and children’s schools. Judy quickly turned her focus to those in our community who needed to understand what she had learned – how to help children born with spina bifida and their families to thrive,” Diane shared.

“My mother is the kindest woman I know, and is willing to selflessly help anyone in need. She has shown me through example that kindness truly goes a long way,”  said Dennis Albert.

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Kindness Learned From Her Sons

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Beyond an orientation meeting to introduce me to the Countryside YMCA, I was getting ready for our first official public relations planning meeting. I chose a sleeveless fuchsia colored shirt with white pants because that color combination just makes me smile. When I arrived, and walked through her office door, would you believe, there, standing in front of me was Lori Cook, marketing specialist, wearing – yep, a sleeveless fuchsia colored shirt and white pants!

I don’t think either one of us will forget that moment. We burst out in laughter.  It is color choice that is most people’s closets, even more so when the fuchsia top is sleeveless! It was pretty telling of future relationship. There are a lot of smiles and laughter when we work together.

Lori just brings that out in people. You tend to just feel happier, energized, when she is around.

Last month I was at the Countryside YMCA for its annual Healthy Kids Triathlon. Hundreds of children dove in the swimming pool before hopping on their bikes and then ending on foot, triumphing in front of cheering adults along the way. In the excitement of it all, I discovered as I was getting ready to leave that I had somehow lost my car keys. This, at the country’s largest YMCA which sprawls vast grounds. I was beside myself and Lori calmly told me she would not leave until I found them. I did end up finding the keys after about a half hour and all was good but I was so touched and so appreciative of her kindness and her patience.

Lori Cook, marketing specialist at Countryside YMCA, shares how her inspiration comes from her sons.And recently, when she and I connected personally on Facebook, I got to see another side to her. Her humorous spin on what would otherwise be considered every day family occurrences sends me into a chuckle.

It should come as no surprise then, when I asked her recently where her inspiration comes from, and she pointed to her two sons.

“I think it is really cool the way they think and want to care for others,” she told me, sharing these stories:

“My youngest, Benjamin, who is 14, is like the baby whisperer. He works at a nursery at our church and holds crying babies with such patience. Last Sunday my 3-year-old great niece was having a rough weekend and Benjamin dropped everything in his day to take her to the zoo, putting her in front of his own social and academic life. I want to be able to be like that as an adult. I want to be able to say this whatever is not as important as the people I care about.

My other son, Will, is 16 and is all about giving financially. He is the worker who quietly observes his world, and saves his income until something tugs at his heart. Then he gives his money. He was a lifeguard over the summer, picking up every shift he could. He is very structured with his budget so that he can have money to give back.”

I asked Lori what lessons her boys have taught her. Sher answered, “I have learned from them how to be playful, how to love with your heart first, how to be vulnerable, how to fail and be okay with that, and how hard it is to be peaceful. I see their stress from school and life, and I think it is something that needs to be talked about. Life is hard and needs to be addressed and simplified when can be.”

This Dog Rescue Run Is Her Passion

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I met Lori Gerring several years back through her work on the Paw Joggers Rescue Run. Billie Mendoza, founder and owner of Paw Joggers, whom I have known for many years had expanded her capacity to help pets by forming a nonprofit organization to organize an annual race that would benefit local rescues. And Lori has been Billie’s ‘right hand woman’ since.

The Paw Joggers Rescue Run is this coming Sunday, October 15th, from  8:30am-12:00pm with the race beginning at 10:00am. At Sharon Woods Park (11450 Lebanon Rd; 45241) Competitive Runners, Recreational Runners, Walkers and Runners/Walkers with (well-behaved) dogs invited to participate!

The Race includes a choice of challenging 5k (chip timed event) and a relatively flat 2k course. Proceeds will go to dozens of Cincinnati area dog and cat rescue organizations.

Paw Joggers Rescue Run now includes a Saturday Expo from Noon to 4 pm with a variety of vendors. It will be held at the MARCH FIRST BREWING (7885 Kemper Rd; 45249).

The Paw Joggers Animal Community Fund (Paw Joggers ACF) is a nonprofit organization dedicated to supporting the local animal welfare community through events, awareness, and monetary donations.  The Paw Joggers ACF and its events are powered solely by Paw Joggers Run volunteers.

Lori shared this story of why this Race is her passion.

“Several years ago, my New Year’s resolution was to “do something outside of my comfort zone” each month.  I haven’t always kept the resolution after that year, but helping with the PJRR was most definitely outside of my comfort zone:  I hate asking for donations and cold-calling and I had no idea what goes into a 5K.  The first year was, to put it mildly, a learning experience.

I am involved with the PJRR because I was there when Billie Mendoza decided to form a nonprofit and organize the 5K, based on the Rusty Ball model of beneficiary participation.  A dedicated race participant; Billie took care of the race details. I was the “Communications Coordinator”, contacting vendors, sponsors, volunteers, and promoting the new 5K/2K, last year I added the EXPO to my duties.

The animal welfare community is important to me.  My first dog, Rocket the Black Lab, was from a backyard breeder.  I didn’t know any better.  Several rescues wouldn’t let us adopt because we hadn’t raised a dog and didn’t have an established relationship with a veterinarian.  We took Rocket to rescue group fundraisers because it was fun to be out with him, where we learned about the work these groups do.  Several years later we adopted another Black Lab, Turbo, from a rescue.  After Rocket passed, we adopted Flash (From Elvis Presley TCB in a Flash), also from a rescue.

My first rescue ‘job’ was with Kyle New Hope Animal Rescue.  Dr. Kyle was such an incredible help with Rocket that it seemed like a good way to thank her.    Other volunteer work has been as a Therapy Dog Team with Turbo (and Rocket) for the Alliance of Therapy Dogs; projects, including grant reviews, for the Grey Muzzle Organization; and minor help with the United Pet Fund.

But the PJRR has a special place in my life.  I’m a huge believer in the importance of walking with your dog (for all sorts of reasons) and the PJRR promotes just that.  It’s also a way to help a variety of rescues.  I’ve met so many people dedicated to helping pets.  I’ve learned that pets help people in return so it’s a worth-while cause.  And selfishly it makes me a better person because I push myself to get things done.”

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Rachael Moore Sees Art As Discovery

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Rachael Moore will tell you, she is not an artist but she is a huge fan of the arts. She used to be what she calls ‘that typical visitor’ who would pop into museums during her trips to admire art, but really, not giving it much more thought than whether or not she liked a piece of work.

Rachael Moore of Cincinnati Art Underground talks about how art is discoveryNow, she told me, “I see art as creations by people who lived and breathed, and were inspired. Art just comes alive and is constantly evolving. I can see the story behind it. It is a journey of experimentation for artists who have studied with their minds or hands or philosophical movement.”

Before her metamorphosis, Rachael was on track for a corporate career. She was three years into law school when she moved with her husband to London for several years, and then moved to Cincinnati in 2011 when her husband took a job with GE Aviation. Rachael got involved with the arts a year later with a volunteer position for the Constella Music Festival.

Her transition had begun. Rachael remembers a conversation with a group of local artists. “They needed a chance to show their work, but also I saw such a passion here for people who want to see what Cincinnati artists are doing.”

That is when her vision began to crystallize.

In 2014 Rachael organized several pop-up shows in Over-the-Rhine; and today, she runs an 800 square foot boutique contemporary gallery called Cincinnati Art Underground. Each month it features the work of diverse artists known locally and nationally, with artist talks and events.  Coming up in October, her gallery will feature David Gerena aka KAOS, a graffiti artist who got his start in New York City in the 1980s, when graffiti was considered an ‘underground culture’.

“I like surprising our visitors. I want Cincinnati Art Underground to be a gallery where there is always something more to discover,” Rachael said.

 

 

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